Recommendations to optimise life-long health and wellbeing for people born preterm
This paper highlights the importance of adult clinicians asking about birth history but also understanding the implications of preterm birth and therefore being proactive by putting in place preventative care, but also promoting education for families to learn more about reducing risks through lifestyle behaviours.
“As more people born preterm question the impact being born early
may have on adult health, health care providers must be ready to
Kelly, M. and Tobias, J. (2021) Recommendations to optimize life-long health and wellbeing for people born preterm. Early Human Development, 162(105458)
Molding influences of prematurity: Interviews with adults born preterm
This paper acknowledges that medical advancements over the last several decades have supported the survival of younger and sicker newborns. These interviews aimed to explore how adults who were born preterm perceive the impact of this on their lives.
D’Agata, A., Kelly, M., Green, C., and Sullican, M. (2022) Molding influences of prematurity: Interviews with adults born preterm. Early Human Development, 166(105542)
Core assessments to use in follow-up studies
This study presents recommendations made by APIC (Adults Born Preterm International Collaboration) experts on measures to be used in follow‐up research assessments for adults born preterm. Click to read the full article
Kajantie, E., Johnson, S., Heinonen, K. et al. (2020) Common Core Assessments in follow‐up studies of adults born preterm—Recommendation of the Adults Born Preterm International Collaboration. Paediatric and Perinatal Epidemiology, 35(3).
The PRISM studies: improving children’s mathematics skills following very preterm birth
The PRISM team have bought into focus the struggles that those born preterm have at school, particularly with mathematics where working memory, processing speed and symbolism are required. Read the full text here
Clayton, S. & Johnson, S., 2017. The PRISM studies: improving children’s mathematics skills following very preterm birth– review. Infant 13(2) pg 73-76
A new patient population for adult clinicians: Preterm born adults
This paper acknowledges that adults born preterm are an under-recognised and vulnerable population. Multiple studies of individuals born prematurely, including our 35-year longitudinal study, have found important health concerns that adult healthcare providers should consider in their assessments. Read the full text here.
D’Agata, A., Green, C. & Sullivan, M., 2022. A new patient population for adult clinicians: Preterm born adults. The Lancet Regional Health- Americas 9(100188)
Views of parents, adults born preterm and professionals on linkage of real-world data of preterm babies
This paper was co-authored by Juliette and has found that with appropriate information provision, at the right time, parents, adults born preterm and professionals are supportive of data linkage for research, including where temporary identifiers and opt-out consent are used. Resources are being co-produced to improve communication about routine data linkage. Read the abstract here.
Sawtell, M., Emily, v B., Bilal, T., Juniper, L., Kotsoni, J., Lee, J., Modi, N., Battersby, C., 2022. Views of parents, adults born preterm and professionals on linkage of real-world data of preterm babies. Archives of Disease in Childgood – Fetal and Neonatal Edition. 2022-324272